Kids With Juvenile Diabetes

Location: Florida

Thursday, April 13, 2006

Cost of Prescriptions

Over the last 5 years we have spent probably well into the thousands for my sons supplies, Insulin, lancets, test strips and the list goes on. Why is it so expensive to be sick? What happens to the people that can't afford the supplies they need for daily living and have no means of help? Do they just get sick and die? I have thought about these things for a long time, just for test strips alone per month is 286.00 we have help, but I can't imagine what someone would do if they had no resources. I figured the monthly cost for Diabetic supplies for my son without coverage is 642.00. This is insane!!!! I have heard of people re-using their needles not changing their lancets and not testing regularly to keep cost of supplies down. I find this to be very sad. I wish there was something that could be done to change how the pharmaceutical companies charge for medicine.

Thursday, April 06, 2006

Insulin Pump vs Lantus

We have experience with both Lantus and pumping There are pro's and con's to both but I believe pumping is much better and if your thinking about getting an insulin pump Animas is great they have wonderful customer support and their pumps have the carbsmart feature which let you input your amount of carbs consumed then add blood sugars then it figures how much insulin you need you just hit the button an go. Lantus on the other hand is different 1 shot covers for 24 hours, there is not suppose to be a peak but that is wrong, I would always have to do 3:00 am sugar checks with Lantus even though I was told I didn't need to because there is a slight peak. Even though you only get 1 shot in a 24 hour period with lantus you still have to work a formula for food coverage using Novolog or Humalog the formula we used is  Blood sugars minus 130 divided by 80 then 1 unit for every 20 grams of carbs, sometimes it was very difficult to get the right dose especially with a kid. While to me the pump is more accurate with the dosage right down to a 10th of a unit. The only problems we have had using the pump that we didn't have with Lantus is lows during activity (so now we remove the pump for any kind of physical activity) and problems with his site coming out which means he is getting no insulin and sometimes we have no idea this has happened until we do a sugar check and he is in the 500's.


I figure If I'm able to pick which insulin delivery he gets I would go with the pump.For those on a limited income maybe you don't have health insurance try a children's medical program to get help in covering the pump or any supplies for that matter.  They helped us with DS  pump.


Monday, April 03, 2006

A Good Source Of Health Information

I love it when I come across blogs that have good informative information Health And Wellness 4U is one of those such blogs. After browsing through her post I found a lot of interesting health facts that I did not know. You may want to read her post about food additives this was indeed some scary facts. I highly recommend taking a peek at her blog you may find some very valuable health information there.

Friday, March 31, 2006

Sneaky Carb Eater

My DS is sneaking the carbs again, I wish I could get him to realize what he's doing to his body it seems like we go through this everyday. He's starting to get into the habit of eating chips, and other snack without testing his blood sugar first. There's nothing worse then checking your diabetic child's sugar and the meter reads (HI) that means his sugars are over 600, not good. I sometimes feel like I need to lock the cupboards but he has to learn to have better control over his eating habits. I think I'm going to have to start grounding him again for this even though I was told by his Endocrinologist to not punish for this sort of behavior, His theory is let him have the carbs and sugar just give him insulin coverage for what he eats, well that's all fine but it sure would help if my DS would keep track of what he's putting in his mouth. As it stands now I have to follow him around asking what he has had that he didn't tell me about. What a job!!

Thursday, March 30, 2006

Another face of Diabetes

This is DS horsing around your typical 9 year old, but yet you wouldn't know by looking at him that this is one of thousand's of faces of Juvenile Diabetes. We hope for a cure someday for my son and all the other kids that suffer from this disease. It would be wonderful No more needle sticks, No more finger pricks. No more passing out from low sugar, No more headache's from high sugar. No more worrying about Ketones. Kids with JD would have the same freedom that most of us take for granted.

Tuesday, March 28, 2006

Is your Kid Pumping?

Last October my DS started pumping with an Animas Pump. He started on Lantus which meant we were always chasing him with a needle to cover for food, since he's been pumping we have noticed that his numbers are much more in range but he still sneaks food, were working on that. With the pump you can give insulin right down to a 10th of a unit with the needle we struggled with the exact amount of insulin he needed. I highly recommend the pump for kids it seems to give our DS more freedom with his disease. Here are some advantages of using the pump:

A pump can offer you greater control, more predictability and increased flexibility. With pump therapy you can…
• control your blood sugar with only rapid acting insulin
• automatically regulate your insulin to accommodate dawn phenomenon
• adjust your insulin so you do not have to eat before exercising
• increase your insulin temporarily to cover times of illness, stress or just a long trip in the car
• travel across different time zones with ease
And when you eat or snack, a few button presses will cover as much or as little as you eat!

Monday, March 27, 2006

Information you need to know about Diabetes

Type 1 diabetes occurs when the body's own immune system destroys the insulin-producing cells of the pancreas (called beta cells).Normally, the body's immune system fights off foreign invaders like viruses or bacteria. But for unknown reasons, in people with type 1 diabetes, the immune system attacks various cells in the body. This results in a complete deficiency of the insulin hormone.In people with type 1 diabetes, glucose isn't moved into the cells because insulin is not available. When glucose builds up in the blood instead of going into cells, the body's cells starve for nutrients and other systems in the body must provide energy for many important bodily functions. As a result, high blood glucose develops and can cause: Doctors don't know all the factors that lead to type 1 diabetes. Clearly, the susceptibility to the condition can be inherited.